Resources

There are several resources available to help parents learn more about PMM2-CDG, and about how their child is impacted. The following pages provide links to existing resources, social media groups, registries, research centers, therapy centers and and CDG clinics.

Websites

Organizations

Registries

Biobanks

Therapy Centers

Facebook Groups

  • CDG Global Alliance Facebook Group  – This Facebook group (with almost 1,000 members) connects family members, patients and medical professionals for all CDG sub-types all over the world.

Clinical Trials

CDG Clinics

CDG Map